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Stalked by the Stork...a diary of raising twelve kids

Having twelve children is an amazing blessing and one heck of a crazy ride. Join us through all the joys, smiles, tribulations and trials as we navigate this fabulous journey!

Monday, May 10, 2010

Bad news...

This is a post I was hoping to not have to write. But I know many of you have been waiting along with us and I need to share the news.
We got our results from the cord blood typing and unfortunately, Mia is not a match for Brandon. Apparently, she is not a match for anyone, which I thought would never in a million years be the case. It's supposed to be a one out of four shot that any of our kids would be a match for any other one. All of our "combinations" are in play in one kid or another already (Drew, Jackson and Alex share one combination, Emanuel, Sydney and Bree share another, Brandon has one, and Brice and Isaiah share one.) Apparently, in certain instances a baby's HLA type can be a "recombination" or some type of mutation and apparently this is what has happened. Mia is a "recombination" of our HLA types and thus is not a complete match for anyone.
To say that I am confused, frustrated and even irritated is an understatement. I don't understand how we can miss the mark this many times. We have ten freakin kids and no match still.
Yet, on the other hand I know we have so much to be grateful for and that Brandon is doing so well and we have no reason to think he'll ever be sick again.
We don't know if we'll have more kids. I know that right now, my hands are full. I can't handle another little one anytime soon, so long as Brandon stays healthy. And I don't mean "I can't handle another one" in the selfish sense that there are other things I'd like to do...I mean I logistically can't take on anymore until some of these ones get a bit older. We've talked and talked until we're both exhausted from the subject and still we don't know what we're going to do. We decided to just not even discuss it for the next year...when Mia turns one we'll re-evaluate things and discuss it again. And then maybe agree not to discuss it again for another year. I don't know. And I am not a person who likes not knowing. I guess we'll see what God has in store.
As always, we so appreciate every single person who prayed for us. Even though this didn't turn out as we had hoped, I am fully aware that our prayers have been answered beyond beleif, in that Brandon is healthy and happy and is doing sooooo well. I know that is by far the greater issue. I know God will take care of the situation as He sees fit and that we'll have to be patient and content with that. And I know that Lynn will have a great verse for this situation that she'll kindly post on our comments section and that will give me fresh perspective and I'll be able to shed some of my negative feelings. I know we are very, very blessed and we are so thankful each day that Brandon is here with us and is so healthy. I wish we had a match for him, to provide us further peace of mind and allow us to know that should he need it, he'll have the best treatment available for his disease...but he has God's hand on him, and afterall, THAT is really the best treatment for his disease...

7 comments:

debi9kids said...

Oh no Ang! I knew as soon as I saw the title of your post! DARN! I am so sorry :(
This is a verse I read over & over and I find it gives me comfort and helps to lead me in my life:

Trust in the Lord with all your heart, and lean not on your own understanding; in all your ways acknowledge Him, and He shall direct your paths. (Prov 3.5-6)

Just put your trust in God and He'll lead you...


PS I agree logistically you need to give yourself time... heck, your little ones won't all fit in the stroller! LOL

Jenn H said...

I'm sorry Ang, so sorry that you had to write this post and can't have that extra reassurance!!! I've been praying and will continue to do so. Like you said, Brandon is healthy and thriving. I also know that the unknown can haunt like nothing else can. Praying for peace for you. HUGS my sweet friend!

melinda said...

Hi Ang, Thanks for sharing the results with everyone, I know that must be hard too. We were all waiting and praying with you and still are :) Baby Mia is beautiful.
Melinda.

Anonymous said...

Not too much pressure! Had already picked out this passage before I read this but it actually does fit. The Lord knows why He's allowed this to happen. We have to keep our eyes on Him, uniting our hearts to Him. And even when things don't go the way we think it should, we should still always glorify Him and praise Him because especially when we don't know the why of a situation, He is still full of mercy. It could be as simple as knowing that Brandon will never need the cord blood! Just know that whatever happens, the Lord IS working and He'll get you through it!
Know that you're always in my thoughts and prayers!
Psalm 86:11-13a Teach me thy way, O LORD; I will walk in thy truth: unite my heart to fear thy name. I will praise thee, O Lord my God, with all my heart: and I will glorify thy name for evermore. For great is thy mercy toward me...
Prayer Bears
My email address

Perezosita said...

love you angela -ALI

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